Wednesday, May 22, 2013
My First MS Blog: I love my dogs, but....
My First MS Blog: I love my dogs, but....: So pet ownership has always been my thing. I have no kids by choice so my dogs and cats are my family. In fact I am a sucker for any animal ...
I love my dogs, but....
So pet ownership has always been my thing. I have no kids by choice so my dogs and cats are my family. In fact I am a sucker for any animal and would save them all if I could. My mom always said I should have a farm and just rescue animals. Actually if I ever won the lottery animal rescue support would be my #1 thing.
I have 2 and a 1/2 huskies. Daiys is 10, Gypsy is 1 and Jessie 9 (the 1/2- Daisys daughter mixed with a Springer Spaniel- don't ask lol) are my dogs. Then I also have 3 cats. Before the grand decision to get Gypsy, in hopes to keep the older dogs "young", traveling was not much of an issue. The older dogs don't mind laying around all day with minor human interaction or we would take them with us. With a puppy that all changes.
So where I am going with this is I could not live without my animals, but yesterday I realized how hard it is to travel with having 3. My fiance and I were planning a trip to my mom's (6 hrs away) for the long holiday weekend coming up. We had a plan. His daughter would come and dog sit and I would finally be able to go home for some family time that I only get maybe twice a year. I have not seen my mom since my diagnosis and quite frankly I am in need of some mom time!
Well I return home yesterday after an interesting evening shoe shopping (see yesterdays blog for a laugh) and my finace tells me that his daughter is going to the beach with friends and cannot dog sit. What to do? Stay home and bag the trip! Sad face and disappointment insert here. For a second we said "well we could pile them all in the car for a 6 hr ride!" NOT! The 2 older ones LOVE going to grandmas but there is no way Gypsy would be manageable for such a long ride, not to mention what she would do in my poor moms house! It would be more stress than worth it!
So, you may ask, why not go alone? Well I could but with the fatigue that I fight daily I am concerned about a 6 hr drive alone on a busy holiday weekend. My level of alertness really diminishes as the day goes on.
His daughter is really our only saving grace when it comes to dog sitting. In thinking about this moving forward I realize our days our numbered if not over. She is a Jr. in college and will be moving away after this summer. Will I ever get home again? I hope so but not really sure to be honest. My family does the best they can and come to my house about once a year, but it's so not enough sometimes.
So I am quite sad today as I ponder this. The only solution is for someone to actually live here while we are gone to take care of the animals. Its a big job! Just like kids I want to make sure they are safe and taken car of properly. And that Gypsy does not eat the house while we are gone!
So I will continue to think about this and see if a solution comes to me. I look over at their sweet faces right now and could not imagine life with out them, but MY family is also a need. Life is short. Anything can happen. There must be a solution.......
I have 2 and a 1/2 huskies. Daiys is 10, Gypsy is 1 and Jessie 9 (the 1/2- Daisys daughter mixed with a Springer Spaniel- don't ask lol) are my dogs. Then I also have 3 cats. Before the grand decision to get Gypsy, in hopes to keep the older dogs "young", traveling was not much of an issue. The older dogs don't mind laying around all day with minor human interaction or we would take them with us. With a puppy that all changes.
So where I am going with this is I could not live without my animals, but yesterday I realized how hard it is to travel with having 3. My fiance and I were planning a trip to my mom's (6 hrs away) for the long holiday weekend coming up. We had a plan. His daughter would come and dog sit and I would finally be able to go home for some family time that I only get maybe twice a year. I have not seen my mom since my diagnosis and quite frankly I am in need of some mom time!
Well I return home yesterday after an interesting evening shoe shopping (see yesterdays blog for a laugh) and my finace tells me that his daughter is going to the beach with friends and cannot dog sit. What to do? Stay home and bag the trip! Sad face and disappointment insert here. For a second we said "well we could pile them all in the car for a 6 hr ride!" NOT! The 2 older ones LOVE going to grandmas but there is no way Gypsy would be manageable for such a long ride, not to mention what she would do in my poor moms house! It would be more stress than worth it!
So, you may ask, why not go alone? Well I could but with the fatigue that I fight daily I am concerned about a 6 hr drive alone on a busy holiday weekend. My level of alertness really diminishes as the day goes on.
His daughter is really our only saving grace when it comes to dog sitting. In thinking about this moving forward I realize our days our numbered if not over. She is a Jr. in college and will be moving away after this summer. Will I ever get home again? I hope so but not really sure to be honest. My family does the best they can and come to my house about once a year, but it's so not enough sometimes.
So I am quite sad today as I ponder this. The only solution is for someone to actually live here while we are gone to take care of the animals. Its a big job! Just like kids I want to make sure they are safe and taken car of properly. And that Gypsy does not eat the house while we are gone!
So I will continue to think about this and see if a solution comes to me. I look over at their sweet faces right now and could not imagine life with out them, but MY family is also a need. Life is short. Anything can happen. There must be a solution.......
Tuesday, May 21, 2013
My First MS Blog: Excuse me....this may sound weird.....
My First MS Blog: Excuse me....this may sound weird.....: Ok so the highlight of my day began (at the end of my day) with those exact words. Let me explain. After work today I went on a mission to...
Excuse me....this may sound weird.....
Ok so the highlight of my day began (at the end of my day) with those exact words. Let me explain.
After work today I went on a mission to find some sandals for summer. I won't get into why I need more shoes, but I was desperate. I got rid of most of mine after last year blah, blah, blah...Annnnyyywayyyy.
So, I go to the mall to hit up Macy's. A little note about our mall, it is very desolate and run down so it is not a populated place most times. I walk in the front doors and happen to notice a nice looking younger man walking out. Just as you would notice anyone passing you in public, nothing to make note of. No eye contact, no smiles, just I happened to noctie someone walking out the door next to me as I was walking in. Happens all the time.
So I walk into Macy's and immediatly begin looking at the clothes which is NOT why I went there, but anyway....I am browsing the dresses and hear "Excuse me", I look up and this very attractive man is standing in front of me. YES, the one who was walking out as I was walking in. So I look up and he proceeds to say "I know this may sound weird but I was wondeing if I could have your number and give you al call sometime." AAAWWWW! So I politely say (gushing I am sure because, aaww how flattering) "well thank you but I am sorry to say that I am married." So I am smiling and I thank him for the offer. But yet this young buck does not give up that easy, due to my striking beauty (lol) and proceeds to say "Well maybe we could just go for drinks as friends." Again..aaawww! So I say "well I am really sorry but I am married so I don't think so, but thank you again for asking." We smile, I giggle and he kindly walks away. Poor guy!
So after this I feel so good! Mind you, this man had to be at most 26 years old, good looking, polite and if I was avaliable I would have considered it based on first glance. After deeper conversation I probably would have found out he is jobless, lives with his parents and has a 2 year old kid, and plays video games like it is his job, but luckly I did not have to go there. But what really made me laugh is I am 37 yers old dude! Bless his heart for thinking I was his age. (I do think I don't look a day past 30 if I do say so myself, lol). And to think that I was so striking that he had to come back into that mall and follow me to Macy's! Now for those of you who know me know I say this very toung as cheek as I come down from my high of being asked out by a complete stranger!
So it made my day! It's nice to be noticed by others! And I did tell a white lie as I am not really married by law! But why get into a big story of fiances, dogs, house etc! Don't want to bore the guy to death!
The bigger issues is, did I find my shoes! Well not at Macy's! Not a Kohl's! Not at DSW! But at the last stop- Marshalls! I'm all set now. So if anything this little flattery got me through multiple stores and 2 hrs of dreadful shopping.
I hope he finds a nice girl! Poor guy! Hey, that takes guts!
After work today I went on a mission to find some sandals for summer. I won't get into why I need more shoes, but I was desperate. I got rid of most of mine after last year blah, blah, blah...Annnnyyywayyyy.
So, I go to the mall to hit up Macy's. A little note about our mall, it is very desolate and run down so it is not a populated place most times. I walk in the front doors and happen to notice a nice looking younger man walking out. Just as you would notice anyone passing you in public, nothing to make note of. No eye contact, no smiles, just I happened to noctie someone walking out the door next to me as I was walking in. Happens all the time.
So I walk into Macy's and immediatly begin looking at the clothes which is NOT why I went there, but anyway....I am browsing the dresses and hear "Excuse me", I look up and this very attractive man is standing in front of me. YES, the one who was walking out as I was walking in. So I look up and he proceeds to say "I know this may sound weird but I was wondeing if I could have your number and give you al call sometime." AAAWWWW! So I politely say (gushing I am sure because, aaww how flattering) "well thank you but I am sorry to say that I am married." So I am smiling and I thank him for the offer. But yet this young buck does not give up that easy, due to my striking beauty (lol) and proceeds to say "Well maybe we could just go for drinks as friends." Again..aaawww! So I say "well I am really sorry but I am married so I don't think so, but thank you again for asking." We smile, I giggle and he kindly walks away. Poor guy!
So after this I feel so good! Mind you, this man had to be at most 26 years old, good looking, polite and if I was avaliable I would have considered it based on first glance. After deeper conversation I probably would have found out he is jobless, lives with his parents and has a 2 year old kid, and plays video games like it is his job, but luckly I did not have to go there. But what really made me laugh is I am 37 yers old dude! Bless his heart for thinking I was his age. (I do think I don't look a day past 30 if I do say so myself, lol). And to think that I was so striking that he had to come back into that mall and follow me to Macy's! Now for those of you who know me know I say this very toung as cheek as I come down from my high of being asked out by a complete stranger!
So it made my day! It's nice to be noticed by others! And I did tell a white lie as I am not really married by law! But why get into a big story of fiances, dogs, house etc! Don't want to bore the guy to death!
The bigger issues is, did I find my shoes! Well not at Macy's! Not a Kohl's! Not at DSW! But at the last stop- Marshalls! I'm all set now. So if anything this little flattery got me through multiple stores and 2 hrs of dreadful shopping.
I hope he finds a nice girl! Poor guy! Hey, that takes guts!
Monday, May 20, 2013
My First MS Blog: ANNNDD it's Monday again.....
My First MS Blog: ANNNDD it's Monday again.....: Ok, so I did not complete my weekend list as I had hoped. But I did get a lot of it completed so I am pretty proud of that. Saturday I had a...
ANNNDD it's Monday again.....
Ok, so I did not complete my weekend list as I had hoped. But I did get a lot of it completed so I am pretty proud of that. Saturday I had a burst of energy and then Sunday not so much, I took a long nap. Oh well! :)
Today I FINALLY received the Nuvigil 250 in the mail from my doc. It only took them a week to send me my samples as I am slowly falling into a fatigue coma! Today was much of the same as I it the wall by 1:30pm. So tomorrow I will take the higher dose and see if it helps! Fingers crossed!
Sunday I was a bit unnerved as I was getting some unusual tingeling and numbness in my left leg and hand. It lasted a few hours but when I woke up today it was gone. So crisis averted! If it lasts, that is when you know you have a problem.
Well it was shot time a little bit ago so I will wait for that to settle in and get comfy for the rest of the night and relax!
Today I FINALLY received the Nuvigil 250 in the mail from my doc. It only took them a week to send me my samples as I am slowly falling into a fatigue coma! Today was much of the same as I it the wall by 1:30pm. So tomorrow I will take the higher dose and see if it helps! Fingers crossed!
Sunday I was a bit unnerved as I was getting some unusual tingeling and numbness in my left leg and hand. It lasted a few hours but when I woke up today it was gone. So crisis averted! If it lasts, that is when you know you have a problem.
Well it was shot time a little bit ago so I will wait for that to settle in and get comfy for the rest of the night and relax!
Friday, May 17, 2013
My First MS Blog: TGIF....I Hope
My First MS Blog: TGIF....I Hope: So the sun is shining, the weather is warm and I am loving it! But once again there is this sneaky little condition called MS. I vow it will...
TGIF....I Hope
So the sun is shining, the weather is warm and I am loving it! But once again there is this sneaky little condition called MS. I vow it will not get the best of me, but the reality is if I cannot tame this fatigue I wil sleep right through it all!
As always it was a long week at work, eveyone can agree to that. But for me I left around 3:30 today to come home and take a 3 hour nap because I literally could not function! Not one more step, not one more thought, not one more decision. If I could have, I would have laid down in the hallway floor at work to rest! I was at the point of collapsing and I am not exagerating!
I live about 8 miles from work (yes I am so lucky), and thank God I do. I was actually driving home white knuckled to the steering wheel thinking "I'm gonna make it, I'm gonna make it, only a few more lights and I will be home...so on and so on." Once I made it was so relieved. I kicked off my shoes and hit the sack! What a GREAT way to spend the afternoon in this perfect weather! Yes I am being sarcastic! It pisses me off!
So here are my goal for the weekend: grocery shopping, a walk both days, clean the house, cook, and wash m car. It gives me anxiety just to think about it because I know all of those things may not happen. Each day I think to mysef, just one more good nights sleep and I will be golden tomorrow. That is once again my mantra for tonight!
As always it was a long week at work, eveyone can agree to that. But for me I left around 3:30 today to come home and take a 3 hour nap because I literally could not function! Not one more step, not one more thought, not one more decision. If I could have, I would have laid down in the hallway floor at work to rest! I was at the point of collapsing and I am not exagerating!
I live about 8 miles from work (yes I am so lucky), and thank God I do. I was actually driving home white knuckled to the steering wheel thinking "I'm gonna make it, I'm gonna make it, only a few more lights and I will be home...so on and so on." Once I made it was so relieved. I kicked off my shoes and hit the sack! What a GREAT way to spend the afternoon in this perfect weather! Yes I am being sarcastic! It pisses me off!
So here are my goal for the weekend: grocery shopping, a walk both days, clean the house, cook, and wash m car. It gives me anxiety just to think about it because I know all of those things may not happen. Each day I think to mysef, just one more good nights sleep and I will be golden tomorrow. That is once again my mantra for tonight!
Tuesday, May 14, 2013
My First MS Blog: Nuvigil #2 and other news
My First MS Blog: Nuvigil #2 and other news: Ok so this med is not working for me! Sigh... So they are upping the dose to see if that will make a difference...so to be continued..... ...
Nuvigil #2 and other news
Ok so this med is not working for me! Sigh... So they are upping the dose to see if that will make a difference...so to be continued.....
So since my diagnosis I started following some different blogs as well reading others personal perspective of their own trials on MS groups. Reading these gave me the idea to do this blog for myself. I have to say it helps. It is the diary I know I would never do using pen and paper! How sad is it that picking up a pen and paper is now outdated and too much effort lol. Anyway, a few good points I have read recently that certainly apply to me and some random thoughts:
1. I am so aware of my body that I get on my own nerves..seriously. Every tingle, increasing fatigue, vision blip causes me to be concerned if it is something to worry about or if it is just normal, a fluke. It is very frusturating to live this way but there seems no way around it.
2. I dislike the office staff at my neurologists! But I love my Dr! So I am staying, but geeze you would think they would be kind and have comapssion considering what their patients are going through. The PA actually said to me "whats up" when I called to tell her about the med that is not working! Really- "whats up"! I'll tell you whats up, I have MS and am trying to manage my symptoms and need your help thats whats up! If she could only walk a day in my shoes where I feel like I have to peel my eyelids open to remain upright. So that's "whats up" lady. I could go on but I will spare you...
3. Cognitive issues are a problem! Right now I can not remember what my #3 was actually going to be, but I know it was a good one! It will come to me... maybe
4. I hate that my nail polish chips the day after I paint my nails....just threw that in there because it really bothers me...
5. Social support from other is so important! I am still working on this one. Planning a possible trip to see my family which will help me a lot!
6. The shots are getting to me. The skin reactions are painful and irritating! When will that end.....um never! Unless I am lucky enough to go on an oral med someday.
7. I am glad I have been diagnosed, but pissed that I could have been on treatment 15 years ago! What were those doctors thinking? The older you are when you are diagnosed the more progressed your disease. Yeah me!
So hopefully if anyone else is reading this they can relate to some of it. At the very least it helps me to write it down! I have a lot to be thankful for and a lot to still figure out an learn. One day at a time people, one day at a time!
So since my diagnosis I started following some different blogs as well reading others personal perspective of their own trials on MS groups. Reading these gave me the idea to do this blog for myself. I have to say it helps. It is the diary I know I would never do using pen and paper! How sad is it that picking up a pen and paper is now outdated and too much effort lol. Anyway, a few good points I have read recently that certainly apply to me and some random thoughts:
1. I am so aware of my body that I get on my own nerves..seriously. Every tingle, increasing fatigue, vision blip causes me to be concerned if it is something to worry about or if it is just normal, a fluke. It is very frusturating to live this way but there seems no way around it.
2. I dislike the office staff at my neurologists! But I love my Dr! So I am staying, but geeze you would think they would be kind and have comapssion considering what their patients are going through. The PA actually said to me "whats up" when I called to tell her about the med that is not working! Really- "whats up"! I'll tell you whats up, I have MS and am trying to manage my symptoms and need your help thats whats up! If she could only walk a day in my shoes where I feel like I have to peel my eyelids open to remain upright. So that's "whats up" lady. I could go on but I will spare you...
3. Cognitive issues are a problem! Right now I can not remember what my #3 was actually going to be, but I know it was a good one! It will come to me... maybe
4. I hate that my nail polish chips the day after I paint my nails....just threw that in there because it really bothers me...
5. Social support from other is so important! I am still working on this one. Planning a possible trip to see my family which will help me a lot!
6. The shots are getting to me. The skin reactions are painful and irritating! When will that end.....um never! Unless I am lucky enough to go on an oral med someday.
7. I am glad I have been diagnosed, but pissed that I could have been on treatment 15 years ago! What were those doctors thinking? The older you are when you are diagnosed the more progressed your disease. Yeah me!
So hopefully if anyone else is reading this they can relate to some of it. At the very least it helps me to write it down! I have a lot to be thankful for and a lot to still figure out an learn. One day at a time people, one day at a time!
Monday, May 13, 2013
My First MS Blog: Nuvigil..not so much
My First MS Blog: Nuvigil..not so much: So last week I broke down and called my neuo for a script for something to help with my extreme fatigue. He sent me some samples of Nuvigil....
My First MS Blog: My First MS Blog: Fatigue
My First MS Blog: My First MS Blog: Fatigue: My First MS Blog: Fatigue : Ok so let me explain, MS fatigue is not the same as being tired from not getting enough sleep. Today was a strug...
Nuvigil..not so much
So last week I broke down and called my neuo for a script for something to help with my extreme fatigue. He sent me some samples of Nuvigil. I guess it is a commenly perscribed med for people with MS who have fatigue issues.
So today was my first go round with taking the med....and .....nothing! I still felt tired and exhaused all day! So now what? Wel I guess I will continue to take it this week to see if today was a fluke and then call back for another solution. Sigh.....
On a brighter note I had a great talk with a girl at work who also has MS. I feel so relieved that I have someone I know who I am able to bounce things off of. I was initially asking her about fatigue and this med to see if she had any solutions.
It's very had to find support. I don't mean support in terms of websites or the MS society etc. I mean finding someone who can relate and who you can learn from. Like one of my questions today was "how do you know when you are having a relapse". Seriously, how do you know? That is something I have yet to figure out. Am I having on now because I am so tired? I dont know! There is so much to figure out. Other blogs and websites do help, but sometimes you feel so isolated as if no one understands, and I guess how can they if they don't have MS or know much about it.
One thing I have really been missing is my family. I live really far away from any family support, short of weekly phone calls. And when I speak to my family I certainly don't want to blabber on about my illness. There is more to life to talk about. But I do miss the ability to pop over to moms or stop by my brothers. Sometimes you just need your mom! Maybe a vacation home is in order, however I am positive I would never make the long drive these days in fear of falling asleep or not being alert as I should be. Nuvigil can kick in any time now.....
So today was my first go round with taking the med....and .....nothing! I still felt tired and exhaused all day! So now what? Wel I guess I will continue to take it this week to see if today was a fluke and then call back for another solution. Sigh.....
On a brighter note I had a great talk with a girl at work who also has MS. I feel so relieved that I have someone I know who I am able to bounce things off of. I was initially asking her about fatigue and this med to see if she had any solutions.
It's very had to find support. I don't mean support in terms of websites or the MS society etc. I mean finding someone who can relate and who you can learn from. Like one of my questions today was "how do you know when you are having a relapse". Seriously, how do you know? That is something I have yet to figure out. Am I having on now because I am so tired? I dont know! There is so much to figure out. Other blogs and websites do help, but sometimes you feel so isolated as if no one understands, and I guess how can they if they don't have MS or know much about it.
One thing I have really been missing is my family. I live really far away from any family support, short of weekly phone calls. And when I speak to my family I certainly don't want to blabber on about my illness. There is more to life to talk about. But I do miss the ability to pop over to moms or stop by my brothers. Sometimes you just need your mom! Maybe a vacation home is in order, however I am positive I would never make the long drive these days in fear of falling asleep or not being alert as I should be. Nuvigil can kick in any time now.....
Thursday, May 9, 2013
My First MS Blog: Fatigue
My First MS Blog: Fatigue: Ok so let me explain, MS fatigue is not the same as being tired from not getting enough sleep. Today was a struggle let me tell you! I final...
Fatigue
Ok so let me explain, MS fatigue is not the same as being tired from not getting enough sleep. Today was a struggle let me tell you! I finally broke down and called my dr. for a script for medication to assist with the extreme fatigue. I hate the thought of taking another medication, but weighing that against a losing battle of complete exhaustion I have no other choice.
It's funny because my dr. has mentioned in the past how important it is to stay active and get enough exercise. I love to walk on my trail, but right now I can hardly walk down the hall, lol. So yes Dr., exercise sounds great, but I am so exhausted I can barely stand upright!
I was speaking to a friend of mine today and she was very smpathetic to my struggle. She likened my fatigue to that of having a newborn where you are so delierious with fatigue you don't know if you are coming and going. Now I have never experienced having children but that does seem like a good comaprison. I am delieriously exhaused so therfore my balance is off, I can't think straight and at times I just feel like crying because I am beside myself. So yes that is how I have seen many of my friends who have newborns! It may be very similar. Maybe I should carry a baby doll around with me to make me feel like I am tired for a reason! lol
The interesting thing is I am now learning from my body when I am going to have days like these because I wake up like this. I wake up exhausted not just tired and its hard to move and think. So these are the days when hopefully this medication will help to give me a boost!
The days are longer, the sun is shining, my sandels are ready to be worn and I just want to have some spunk! I guess it always could be worse! Now time to rest up!
It's funny because my dr. has mentioned in the past how important it is to stay active and get enough exercise. I love to walk on my trail, but right now I can hardly walk down the hall, lol. So yes Dr., exercise sounds great, but I am so exhausted I can barely stand upright!
I was speaking to a friend of mine today and she was very smpathetic to my struggle. She likened my fatigue to that of having a newborn where you are so delierious with fatigue you don't know if you are coming and going. Now I have never experienced having children but that does seem like a good comaprison. I am delieriously exhaused so therfore my balance is off, I can't think straight and at times I just feel like crying because I am beside myself. So yes that is how I have seen many of my friends who have newborns! It may be very similar. Maybe I should carry a baby doll around with me to make me feel like I am tired for a reason! lol
The interesting thing is I am now learning from my body when I am going to have days like these because I wake up like this. I wake up exhausted not just tired and its hard to move and think. So these are the days when hopefully this medication will help to give me a boost!
The days are longer, the sun is shining, my sandels are ready to be worn and I just want to have some spunk! I guess it always could be worse! Now time to rest up!
Wednesday, May 8, 2013
My First MS Blog: It's Wednesday...Where have I been!
My First MS Blog: It's Wednesday...Where have I been!: Well, I have actually been busy! This past weekend was beautiful and I made it a point to enjoy it! A long walk on Saturday followed by a fu...
It's Wednesday...Where have I been!
Well, I have actually been busy! This past weekend was beautiful and I made it a point to enjoy it! A long walk on Saturday followed by a fundraiser for the March of Dimes where I got to see some dear friends. Then Sunday was dog day! Took all 3 girls to the dog park for a run and some socialization. That is always a sight and an adventure. Monsters!
By Monday I was exhausted, Tuesday had a hair appt and today I am relaxing.
I know all of this is so facinating! lol. But I actually feel pretty "normal". The fatigue is always right on the surface of everthing I do which is a bummer. I am always concerned that increasing fatigue is a sign of a flare up. We will see.
One of my favorite things is to take long walks on a trail by my home. It is about 4 miles I would say and takes me about an hour and fifteen minutes to finish. I did go out Saturday while it was still pretty cool in the day. On the way back, probably 15 minutes left, I noticed my inner thighs were going numb! I have never experienced this before. But I refused to sit down and take a break I pushed through and with some rest it went away. I am not sure if that was the smartest thing but it was definitly a result of my being so stubborn!
On Sunday I noticed that the heat of the day was too much. Now taking the three girls out is no small feat! But it was hot and I did not have the energy to walk them after we let them play for about a half hour in the park. Bummer.
All of this just means that need to budget my energy better and be more aware of what my body is telling me. This is all a learning process. That is the upsetting part of this disease, you have to budget your energy! yuck! But again I am very fortunate that I am still able to do what I want! I remind myself daily that things could be much worse, so what that I am tired more!
My neuro suggested some medication to assist with the fatigue. I am holding off for now but I am not sure how much longer. I am contemplating trying it to see if it make a difference. As with any medication there are side effects- this one being insomina! Gee from one extreme to the next!
Tonight I am looking forward to watching some TV and spending time with my family! Night all.....:)
By Monday I was exhausted, Tuesday had a hair appt and today I am relaxing.
I know all of this is so facinating! lol. But I actually feel pretty "normal". The fatigue is always right on the surface of everthing I do which is a bummer. I am always concerned that increasing fatigue is a sign of a flare up. We will see.
One of my favorite things is to take long walks on a trail by my home. It is about 4 miles I would say and takes me about an hour and fifteen minutes to finish. I did go out Saturday while it was still pretty cool in the day. On the way back, probably 15 minutes left, I noticed my inner thighs were going numb! I have never experienced this before. But I refused to sit down and take a break I pushed through and with some rest it went away. I am not sure if that was the smartest thing but it was definitly a result of my being so stubborn!
On Sunday I noticed that the heat of the day was too much. Now taking the three girls out is no small feat! But it was hot and I did not have the energy to walk them after we let them play for about a half hour in the park. Bummer.
All of this just means that need to budget my energy better and be more aware of what my body is telling me. This is all a learning process. That is the upsetting part of this disease, you have to budget your energy! yuck! But again I am very fortunate that I am still able to do what I want! I remind myself daily that things could be much worse, so what that I am tired more!
My neuro suggested some medication to assist with the fatigue. I am holding off for now but I am not sure how much longer. I am contemplating trying it to see if it make a difference. As with any medication there are side effects- this one being insomina! Gee from one extreme to the next!
Tonight I am looking forward to watching some TV and spending time with my family! Night all.....:)
Friday, May 3, 2013
My First MS Blog: Friday Fun
My First MS Blog: Friday Fun: TGIF! What a long week, but I think I say that every week. Finally feeling better from this horrible cold. Just a few sniffles and coughs le...
Friday Fun
TGIF! What a long week, but I think I say that every week. Finally feeling better from this horrible cold. Just a few sniffles and coughs left!
So after work today was a girls evening out, impromptu. A co- worker and myself went for mani-pedis and it was a nice treat. I reminded me how important it is to relax, enjoy friends, have a laugh and treat yourself. So muh time has been spent lately feeling sick that it was nice.
So everyone at work has such nice tans, including my co-worker friend. So after the mani-pedi she drug me along to go tanning. Now this is something I have only done one other time in my life, but what the heck. I have always been a sun worshiper and in the back of my mind think about the dangers of tanning, but what the heck! lol. It will be nice to have some base color and feel alive. To some this may sound sad that having a tan brings joy, but I have to say I always feel better with a little color. You only live once I guess.
All this weekend it is supposed to be warm and sunny and I am looking forward to some long walks, relaxing, and going to a friend fundraiser this weekend! I better rest up!
:)
So after work today was a girls evening out, impromptu. A co- worker and myself went for mani-pedis and it was a nice treat. I reminded me how important it is to relax, enjoy friends, have a laugh and treat yourself. So muh time has been spent lately feeling sick that it was nice.
So everyone at work has such nice tans, including my co-worker friend. So after the mani-pedi she drug me along to go tanning. Now this is something I have only done one other time in my life, but what the heck. I have always been a sun worshiper and in the back of my mind think about the dangers of tanning, but what the heck! lol. It will be nice to have some base color and feel alive. To some this may sound sad that having a tan brings joy, but I have to say I always feel better with a little color. You only live once I guess.
All this weekend it is supposed to be warm and sunny and I am looking forward to some long walks, relaxing, and going to a friend fundraiser this weekend! I better rest up!
:)
Subscribe to:
Posts (Atom)